The BioVU DNA databank receives leftover blood from regular laboratory test samples, extracts the DNA and storebanks it in a genetic library bank. These DNA samples are linked to medical record information in a manner that removes all patient identifiers, and generate an innovative, powerful discovery science tool. In the Synthetic Derivative database, a patient's medical records are de-identified, or "scrubbed" clean of identifying information. The description of medical events is retained and linked with the DNA by an anonymous code. Parents of pediatric patients, like adult patients, will be given the opportunity to decline their child's participation, or opt out.
Louis Muglia, M.D., Ph.D., vice chair for Research Affairs, believes that adding pediatric patients to the BioVU system is critically important. "The database will accelerate research for adults, and children should have that same benefit of scientific discovery that the adult population has. New discoveries for children's health should not lag behind," said Muglia.
Bio VU Information for Investigators
Last Edited: December 1, 2009